Hi! I was referred here by the RSDSA.org  website.On  Saturday,the 24th @ 5:00 AM,I took 20-25 minutes writting a response,but since I wasn't a member on this site,all was deleted(how nice!-NOT).Now,I'm a member,so here I go,AGAIN!! Anyway,what a BRAVE  young lady,COURAGEOUS!!! I know MOM IS PROUD!!!  Me,I'm THANKFUL to have a young lady be involved(I'm not sure to what extent her involvement is in putting everything together)in such an event,bringing awareness in a City the size it is.YOU GO-GIRL!!!  I'm a male,43,married,have had RSD in all 4 limbs-13+ years,shoulders to fingertips;hips to toes,crutches@ home,wheelchair away from home;on about 17 meds(some daily-others as needed,thankfully,it's no fun being a Zombie).I live in Pasadena,Ca.,just 10 miles from Los Angeles City Hall,and only because I read of the event  @ 4:45 AM on March 24th,bearing in mind that due to RSD/CRPS,the CA. DMV  took my Driver's License,I can't drive,not enough time to find a way to attend the event,nobody to drive that far on short notice either,nothing I could do!!!  Anyway,only if you have the time,I'd appreciate knowing about it-the ups(no,NOT the company-hahahaha-a joke),downs&betweens,you know-just everything!!! Lastly,the T-Shirts,IF there any left,I wear a Large&DEPENDING on the wording I MIGHT buy 1OR2OR3OR4!? Just let me know about it when you reply. So,reply to Yahoo  at         hegavemenewlife.SO,'till then,bye!!!      P. S. What a LUCKY MOM!!! BE PROUD !!!      

I was lucky enough to meet both Ashley and her mom, and congratulate them on a job well done. There's more work to be done to get the word out about RSD, and they plan on doing more shows in the future! Great Work! Matt