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I WILL HEAR:)
I went to see if it was possible to get my hearing back on wed after being deaf for 5 years:)OH YAH!!! Current mood: excited Category: Life Well you guys this is how the day went down,,and don't cheat and go to the pics :) I left here late,, but got to LA in time to see my buddy Nate for a bit,his daughter was still in ICU and she got out to a reg room latter,,Nate is my best nf2 buddy:) this is him and us at the hospital . Now I go across the street and HEI is the best at what they do,,hearing institute,, and so they put this in the lobby last week,,makes it easy to explain to my son what they were going to do,, but still funny to him:). SO we go into one of the rooms with the assistant and she explains the test to me AGAIN and says that I may not get a reaction from the test,,OK I understand and will try not to be disappointed if it doesn't happen,,so THEN she get the doctor and they numb the one side of my eardrum but tell me its going to hurt if the nerve is intact because they cant numb that side,,they strap me down,,and put all these things over your ear and around your head,I said ya this I saw on 20/20 and your setting me up,,they laugh,,I told my brother they just are going to stick that needle in and give me a lobotomy,,they laugh,,NOT FUNNY,,well kinda haha,, so the poke a hole through the eardrum and throw in a needle and it then sends out an electrical impulse of sound,,GUESS WHAT!! YA! I heard it right off,, yup:) and it was amazing,,a pulsating sound,,and then I said yup I hear it,, and my brother and son were amazed,,and the doctor came around and was SHOCKED,,he said you hear that? I said yes,,and then the doc told her turn it off and see if she notices,, it may be her imagination,,and she did,,I said you just turned it off,,and they looked dumbfounded,, :) and so then the doctor went behind me and they turned it back on and I said you turned it back on,,the doctor said she DOES hear it and her nerve is completly intact,,crazy since I have an intact nerve BUT CANT HEAR,,shit,,so they made it louder and said does it hurt? i said nope you just turned it louder,you could see how excited my doctor was,,and SHOCKED:) so then he got my chart and said you don't have any new tumors in the head for the last few years and that tumor is gone right,,I said yup,so we need to wait and get approval for new MRI's and a cat scan so I can make sure I don't have a new tumor in there and can show the insurance I can get this implant and it WILL work,,I have a backup in case they try to deny me,there is an association that helps people that have the nerve there and are candidates for the implant with insurance issues,,they MAKE your insurance help you:) Its going to happen,,I just have to make sure there is no new tumors,,I don't think so ,,I haven't in years:) but It was amazing. I then went to meet Dan the man:) We hung out and talked with me and my brother and son,,so today was a GREAT DAY!! Thanks for all the well wishes,,they really meant alot to me and I know its GONNA HAPPEN!!!! Hugs I love you all!!:)
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woofwoof - > I WILL HEAR:) -> What do you want to be remembered as?
What do you want to be remembered as?
Do you let the horrible and great things in life define you? Do they make you who you are?
I was reading about some person that went deaf in life. That they didn't let the deafness be something that was negative in their life. They didn't let it be the main characteristic that defined them.
I have to say I have had some less then great things happen in my life. Deafness in 2001 was one of those things. But If I hadn't become deaf? Would I be a different person now? I would have to say YES. I don't know if I would have been as strong or positive in life. I try to seek positives in things and at times say Why would that have happened? I am at loss for a few things butttttt,,,,,
I know it shaped me. It made me really listen better to my family and friends. Made some of them more understanding and with MORE PATIENCE:) BUT it doesn't define me. I have learned to adapt. I have my cell phone and I am a text kinda gal and email girl:) I do have my SPECIAL phone which can be so much fun at times. BUT not everyone knows how to use a VCO phone call. A VOICE CARRY OVER conversation is with me talking on the phone and then saying GA which tells the other person Go Ahead. Then that person talking and an operator types  what is said. ALWAYS FUN:) You get no privacy but something it needs to be done. I always tell the operator god bless because I am sure they aren't paid enough. Last week I told the operator If I don't get you again soon,,HAPPY THANKSGIVING. She said I have had you before,, I hope to have you again. Now I find that HILARIOUS:) You see the code for the operator as some numbers and then a F or M at the end. For female or Male. Sometimes I wonder how the males handle GIRL calls:) Oh well,, tis the life for them I guess. BUT GOD BLESS THEM since I would be lost without them at times.

There is two ways you can call into the 711 system. Computer,,or home regular TTY machine. If you call on the computer. You type and the operator has to say what you type:) now that's where my fun can happen. YA,,,, I have typed to a friend,," WHAT UP HO!" She almost died because my operator has to say it. If I were to say"I buried my neighbor in the backyard for doing the Macarena  naked with the window open". THEY CANT TELL ON ME. NOPE. They are legally obligated NOT TO TELL. See how my funny trait can deal with that? Ya:)

You know if I had to become deaf,,then so be it. It could have been worse. The tumors COULD have and would have killed me if I had never done a thing. BUT I don't think of myself as this "deaf " helpless girl.  I think people who end up with NF2 are the some of the strongest people alive. I mean who wants never ending MRI's done every year? Who wants to live their whole life thinking of tumors could be happening all the time? Since I have it,I have donated my hearing nerves,,my tumors and my surgeries are taped. I even said they need a guinea pig look me up. How else do you let them learn? How else can I help my family? Its genetic. So I want to help my family down the line.
Just don't let the negatives hurt you in life. Try to turn them into something that defines you in a  postive light. I wont be that girl was know as OH THAT DEAF GIRL? I want to be known as the girl that was always smiling:) NO MATTER WHAT.
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posted by woofwoof on Monday, November 12, 2007 at 10:06 AM
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posted by an1ok1joe on Nov 12, 2007 at 11:28 PM
Woof you said it! You see i think things are put in our path to  beat, or work around. It teaches us important things about us. That's is for us that choose to see it that way. I'm glad you are positive, The world needs to see life like this and it would be so different itself. A much better place to live in.
posted by woofwoof on Nov 12, 2007 at 11:32 PM
A friend of mine told me "Of course it's not what happens that defines us; it's what we choose to do about it." 

The ability to overcome (or not) is what  defines you. . I like those two statements.
posted by Kindra79 on Nov 13, 2007 at 10:24 AM

:)  Hahaha, "what up ho"!  That reminded me of a Spoonie Luv prank call from Crank Yankers ... he calls a floral shop and is telling the lady things to write down on the card, you hear her kind of saying them to herself and mumbling "uh-huh", "okay" as she writes stuff like "I love you more than you know, but you did me wrong.  Give one dude a BJ shame on you, give two dudes a BJ shame on me. If you think I can't get to you, you're wrong. You ain't nothing but a stupid ho.  Love your Teddy Bear", then she's like "No, no, we can't put that, how about, I'm sorry ... I love you"

And back to subject ... You are awesome, and are so incredibly right about it's how we choose to live with what is thrown with us, rather than have what is thrown at us choosing how we live.

 

posted by woofwoof on Nov 13, 2007 at 10:31 AM
OH MAN THATS FUNNY:)
You know I think the bad things that happen in life shape us in a way. Shows us how to survive and be stronger. IT WILL EITHER BREAK YOU  OR MAKE YOU. Its your choice to chose which path to take.
posted by twinkie on Nov 13, 2007 at 12:27 PM
Woofs, take it from someone who knew you before you were deaf. You ARE the same person. Ever since I've known you you've always had a big heart, always been positive and strong. ALWAYS!
posted by woofwoof on Nov 13, 2007 at 04:35 PM
You know there is the People who have known me BD. BEFORE DEAF:)  Then there is the people that have known  me since after I became deaf. I tried not to be jaded by it all.  I am not saying it didn't mess with me in the beginning and I don't have BAD days. I try to keep them as bad moments:) HUGS
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